Nadia fundraises for Ukraine in Cuckfield

Ukraine has been an independent state since the collapse of the Soviet Union in 1991. At the time of writing, and according to data collated by the United Nations, there have already been almost 3,000 civilian casualties, more than eleven million refugees fleeing the hostilities, and over £400m given in UK aid alone. As the fighting continues, more and more doors are opening up across Britain from individuals and families welcoming those trying to escape the conflict. Dozens of charities throughout the UK have raised huge sums of money in support of the ongoing humanitarian crisis.

Social media is awash with fundraising pages illustrating ways in which we can do our bit to help. Local businesses and everyday people are all also getting involved, from sporting events and quiz nights, to auctions, charity concerts and lottery raffles. And some are baking cakes. Nadia Clay is a former Ukrainian national and at the end of March she held a bake sale in the centre of Cuckfield. She, her Slovakian friend, Zoya Karcova, and her eldest son Max helped to raise over £1,000 for the Disasters Emergency Committee Ukraine Humanitarian Appeal. Apart from Zoya and her baking a lot of cakes, many were also kindly donated by local people as well as parents of pupils attending Holy Trinity school. “I have so many people to thank and don’t quite know where to start. The list is long and rather than thank people individually I’d just like to say, ‘thank you so much to everyone who got involved and to all those who turned out on the day; you know who you are’.”

Nadia has lived in the UK for over eight years now. Max went to Warden Park, her youngest son, Alex, still attends Holy Trinity School and was baptised in the local church. Also, she was married in Cuckfield, so she knows the village and the people that live here very well. But Ukraine will always be close to her heart. “There are so many people, especially in Eastern Ukraine, who have fled their homes who now face the challenge of completely rebuilding their lives and starting all over again.”

Nadia grew up in the city of Ivano-Frankivsk, 600km west of the capital, Kyiv. “I am from the Oblast Mountain region not too far from the Polish border. It is very green with many unique villages nearby. It is also very close to Bukovel, the largest ski resort in the whole of Ukraine. It is very beautiful there.” Both of Nadia’s parents still live in the Ivano-Frankivsk, and neither one of them wants to leave, even if the fighting spreads. “My father and mother are both elderly now. My dad doesn’t want to leave the home that he’s lived in all of his life. My Mum feels the same way. Every day I worry about them, about not being able to see them again, or my friends. We were supposed to be visiting them later this month but that’s not going to happen now.” The sense of helplessness Nadia feels, not only for her family, but also for the Ukrainian people as a whole is clear.

Even from our quiet corner of Mid Sussex, we must all hope for peace. Plus, of course, there are many ways to support the people of Ukraine, both practically and financially.

Bolnore hosts Queen's Jubilee Picnic - June 3rd 2022

By Louise Smith

What a rollercoaster we have all been on, trying to work out how to live in a pandemic, that is hopefully coming to an end; juggling work, family and friends with bubbles, PCRs and lateral flow tests, who knew I’d ever be writing a sentence like that? I for one have really missed seeing my friends and being part of the ins and outs of their everyday lives and vice versa.

My world has shrunk, to a much smaller bubble and is a lesser life. One of my aims, now we are able, is to grow those relationships back. To nurture them, spend afternoons in the sun playing games, eating picnics and sipping a cool drink or two! So I’m really happy to have an excuse, to be going to the Bolnore Queen’s Jubilee Picnic right here in the centre of the village next month. I’d also really like to see your friendly faces there, so you too can be the makers of a wonderful memory for you, your friends, families and neighbours.

The plan is simple, rock up to the rec, bring food, drink and activities and if you can, be a maker of the best celebration, run a rounders match, throw a frisbee, share your activities with your neighbours. Simple, community led fun for everyone. Starting from scratch post pandemic, this will be the one of a number of events in the village, (the fête will be back on the 16th July) Halloween celebrations and of course the build up to Christmas (yay, join in with a village wide living advent calendar).

More village makers are needed so if you’d like to be involved in creating the one of best places to live, please do join in. So looking forward to see you; I will be the one wearing red, white and blue! The Bolnore Queen’s Jubilee Picnic will take place from 12.00pm on 3rd June at Tim Farmer Recreation Ground, Middle Village, Bolnore, Haywards Heath.

Understanding Parkinson's Disease

By Jacqueline Elmore

If you were an adolescent in 1985, when sci-fi comedy Back to the Future was first released, you might have heard of its leading star, Michael J. Fox. For a long time, his boyish charm was the object of my teenage affection.

The skateboard, that red body warmer, those Calvin Klein underpants and the fact that he was 24, playing a 17-year-old who was sent back to 1955 in a timetravelling Delorean. I didn’t care. He was it for me.

By 1991, I had pretty much seen all of his movies and was still in hot pursuit of those that followed. Yet it was in this year, at the age of just 29, that Michael was first diagnosed with early on-set Parkinson’s disease, a neurodegenerative disorder that affects part of the brain which leads to a reduction in dopamine (a chemical that plays a key role in movement and coordination) - a condition I knew nothing about.

“... I came home and did what everyone tells you not to do, I went onto Google and searched ‘writing getting smaller’ and the words Parkinson’s disease flashed up straightaway.”
— Nicky Leask

In 1998, almost twenty five years ago, he finally disclosed his news to the world and subsequently made it his life goal to commit himself to Parkinson’s research; a subject I still knew very little about.

That is until I got the chance to speak to Nicky Leask.

Nicky is a long-standing and much loved resident of Cuckfield, who, at 48, was also diagnosed with early onset Parkinson’s disease.

“It’s really hard to pinpoint the moment when my symptoms started to occur. A lot of people still don’t know what Parkinson’s is and for many that have it, they can live for years not knowing they have it or before getting a final diagnosis.”

Excerpt from March 2022’s issue of Cuckfield Life